Other Helpful Organisations

Many of those with Lupus also have other related conditions or complications such as Vasculitis, kidney disease, Sjogren’s Syndrome and depression amongst many others.

Therefore we have compiled a list of some of the charities, groups and organisations which focus upon these specific conditions or factors.

Please note this is not complete list but is intended as a guide to help you find the additional information and support that you require.


Lupus Group Ireland
Lupus UK
The Hibbs Lupus Trust
St Thomas’ Lupus Trust
Lupus Foundation of America

Raynaud’s Phenomenon:

Raynauds & Scleroderma Ireland
Raynaud’s & Scleroderma Association


Fibro Ireland
Fibro Support Northern Ireland
Fibro Action (UK)


Arthritis Ireland
Arthritis Research (UK)
Arthritis Care (UK)

Hughes Syndrome ((antiphospholipid syndrome))

Hughes Syndrome Foundation (UK)

Sjogren’s Syndrome:

British Sjogren’s Syndrome Association (UK)
Sjogren’s Syndrome Foundation (USA)

Kidney Disease

Irish Kidney Association

Cardiovascular Disease:

Irish Heart Foundation


Vasculitis Awareness Ireland
Vasculitis UK


Aware Ireland


Migraine Association of Ireland

Smoking (Giving up)

ASH Ireland - Action on Smoking and Health

Sun Protection

Care in the sun Northern Ireland

Healthy Eating:

Nutrition & Health Foundation

We hope that you found this guide to some of the various charities, groups and organisations which are relevant to people with Lupus in Ireland useful.

If you would like further information about contacting a particular charity or group, or have queries please do not hesitate to get in contact with: Frances Harkin Campaign & Communications Officer francesharkin@lupusgroupireland.com