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As most of you know Lupus Group Ireland wound down “officially” as a charity in May of this year and as a result we had excess funding in our account in the sum of €46,451.00. After months of talking with researchers we have come to the decision to donate these funds directly into Lupus Research in Ireland.   In total, over the 3 years since LGI was established, we have donated in the region of €56,000.00 towards Lupus Research in the country.  Have a look a look at our video below and visit http://www.lupusgroupireland.com/about-lupus/medical-research.html to find out more about the research that we have helped to fund.

 


Big thank you to everybody who has signed up for the Vhi Women's Mini Marathon this year!! All sponsorship packs are being finalised and we will be posting them out from next Monday 16th March onwards!! If anybody has registered and would like to support a great cause please contact Aaron at a_o_bryan@hotmail.com for further details. Please help support small charities like ours and register to walk run or jog for LGI this year. We have already donated €10k to research with a further incentive to donate further to Irish research in the following months!!! We need events like these to continue to support Lupus in Ireland!!

 

For Further information on the marathon and how to register please click here


Midlands Meet Up on 22nd February 2015

Casual meet up between members on Sunday 22nd February @ 4pm in The Heritage Hotel, Portlaoise.

Elaine Doheny & Elaine Gleeson are organising this event. For further info or if you think you would like to attend please contact info@lupusgroupireland.com!!


I attended a follow up meeting today where the details of the Expert Panel report and the medical card process review carried out by Prospectus & Deloitte were released. I'm going to give a brief summary of the recommendations of these reports. The press release was after our meeting so you may have heard or seen online some of the reforms to be implemented.


The Discipline of Occupational Therapy, Rheumatology Department in St. James's Hospital and the National Disability Authority (NDA) are carrying out research into the impact of fatigue in rheumatic conditions on ability to work and the effectiveness of workplace accommodations.