Members Stories

Jessica O'BryanI believe I have had Lupus for many years now. It may have started when I was travelling around Australia in 2006.  Whilst backpacking through the east coast I began to break out in severe rashes on my arms, legs and chest. Blister on top of blister would form and no amount of creams...

Ciara's StoryIt was Christmas 1999 and I was 17 years old when I began to feel very unwell.  I was vomiting and I was so weak (my haemoglobin was at 2, normal range is 12) when I was eventually admitted to hospital.  Once admitted I had to receive 8 units of blood into my system...

Ann-MarieWhen I was younger I was never that ill I used to get stomach cramps but nothing extra ordinary, so when I did begin to feel sick constantly I knew something wasn't right. I suppose it all began about 6 months after my leaving cert. I took a year break between school and college and...

I was diagnosed with Lupus (SLE), Sjogren’s syndrome and Raynaud’s phenomenon in 2003 when I was fifteen years old. However I had been suffering with symptoms of these conditions for several years prior to my diagnosis, which I believe is fairly common amongst sufferers of...

Emma FarrellyI was diagnosed with SLE formally in 2008 and my case seems to be extremely rare. As you can imagine its very frustrating and confusing at times. I should probably go back July 2007, when I approached my doctor about feeling unwell. For the previous 2 years or so I had noticed...